Care for the child, support for the family
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Finding extra help

 

ACT -The Association for Children with Life Threatening
or Terminal Conditions and Their Families

Information helpline and their web-site is full of useful information.
www.act.org.uk

 

Ty Hafan

The Children's Hospice for Wales.
www.tyhafan.org 

 
Children's Hospices UK (formely The Association of Children's Hospices)

Find out more about Children's Hospices across the country.
www.childhospice.org.uk

 

Contact-a-Family

Support and information to parents caring for a child with any disability or special need.
Lots of information about rare disorders and conditions and organise groups for parents to support each other.
www.cafamily.org.uk

 

Whizz-Kidz

A charity who aim to give mobility to physically disabled children in the UK.
www.whizz-kidz.org.uk

 

Child Bereavement Charity

Resource and information to bereaved families and their families.
www.childbereavement.org.uk

 

CLIC Sargent

Practical help, medical resources and research into childhood and teenage cancer.
www.clicsargent.org.uk

 
Pan Birmingham Palliative Care Network (PBPCN)

Set up in 2001 with the aim of creating the best possible experience for those coming to the end of their life.      

www.birminghampalliativecare.com
 
EQUIP

An NHS website which signposts members of the public to useful health and social care websites that have been quality-checked and has a directory of over 4200 support groups and services both national and local to the West Midlands.
www.equip.nhs.uk