Finding extra help

Find other sources of help and support from the list below

Batten Disease Family Association
Formed in 1998 to provide support and advice to families/carers and healthcare professionals who have contact with a child with Batten Disease.
www.bdfa-uk.org.uk

Bliss
Special care baby charity providing care and support to premature and sick babies across the UK.
www.bliss.org.uk

British Association for Counselling and Psychotherapy
BACP can provide advice on a range of services to help meet the needs of anyone seeking information about counselling and psychotherapy.
www.bacp.co.uk

British Heart Foundation
A source of help and advice for conditions related to the heart.
www.bhf.org.uk

Child Bereavement Charity
Resource and information to bereaved families and their families.
www.childbereavement.org.uk

CLIC Sargent
Practical help, medical resources and research into childhood and teenage cancer.
www.clicsargent.org.uk

Contact-a-Family
Support and information to parents caring for a child with any disability or special need.
Lots of information about rare disorders and conditions and organise groups for parents to support each other.
www.cafamily.org.uk

DirectGov – Caring for Someone
A source of further information about public services and guidance for people with carer responsibilities.
www.direct.gov.uk/en/CaringForSomeone

EQUIP
An NHS website which signposts members of the public to useful health and social care websites that have been quality-checked and has a directory of over 4200 support groups and services both national and local to the West Midlands.
www.equip.nhs.uk

Help the Hospices
The leading charity supporting hospice care throughout the UK.
www.helpthehospices.org.uk

The Jennifer Trust for Spinal Muscular Atrophy
The Jennifer Trust for Spinal Muscular Atrophy is the only national charity in the UK dedicated both to supporting people affected by SMA, and investing in essential research into causes, treatments and eventually a cure for the condition.
www.jtsma.org.uk

KidsHealth
KidsHealth is the most-visited site on the Web for information about health, behaviour and development from before birth through the teen years.
www.kidshealth.org

Lifelites
Through the power of technology and high tech entertainments, Lifelites is the only children's charity striving to give children in hospices the chance to spend quality time with their families, the means to keep in contact with their school and friends, and simply to enjoy themselves.
www.lifelites.org

Make-A-Wish Foundation UK
Make-A-Wish Foundation UK grants magical wishes to children and young people fighting life-threatening illnesses. Since being established in the UK in 1986, the charity has granted over 5,700 wishes.
www.make-a-wish.org.uk

Muscular Dystrophy Campaign
The leading UK charity focusing on all muscle disease and provide support to anyone affected by muscle disease - children and adults who have a condition, and clinical, education, health and social care professionals.
www.muscular-dystrophy.org

National Autistic Society
The leading UK charity for people with autism (including Asperger syndrome) and their families.
www.autism.org.uk/

NHS Direct
A source of information about illnesses and conditions.
www.nhsdirect.nhs.uk

RADAR
RADAR is the UK's largest disability campaigning organisation.
www.radar.org.uk

Sands
Provides support to anyone affected by the death of a baby and promotes research to reduce the loss of babies’ lives.
www.uk-sands.org

Sibs
Sibs is the UK charity for people who grow up with a disabled brother or sister. The charity supports siblings who are growing up with or who have grown up with a brother or sister with any disability, long term chronic illness, or life limiting condition.
www.sibs.org.uk

Together for Short Lives
The UK voice for children and young people who are not expected to reach adulthood and their families. www.togetherforshortlives.org.uk/

Ty Hafan - The Children's Hospice for Wales.
www.tyhafan.org

Whizz-Kidz
A charity who aim to give mobility to physically disabled children in the UK.
www.whizz-kidz.org.uk