Facts and figures
What we do
- Acorns provides babies, children and young people aged 0 – 18 years who have life limiting or life threatening conditions and associated complex needs with a network of specialist palliative nursing care and support.
- Eligibility for children is based on the four categories of life limiting or life threatening conditions as established by Together for Short Lives:
- Conditions where curative treatment may fail
- Conditions where premature death is inevitable
- Progressive conditions without curative options
- Irreversible conditions causing severe disability
(full details are in footnote 1)
Please do not use the phrases ‘terminally ill’ or ‘will not reach adulthood’
- A holistic service meets the needs of both the children and young people and their families, including the bereaved. This includes short break provision; emergency and end of life care; therapeutic and psychosocial support; sibling services; and family support.
- Acorns serves the areas of Birmingham, Coventry & Warwickshire, Walsall, Sandwell, Dudley, Wolverhampton, Worcestershire, Herefordshire, Gloucestershire, Staffordshire and Shropshire
The children and families we support
- Acorns has helped over 2,630 children and their families since it was established in 19883.
- Last year2, Acorns supported over 840 children and more than 1060 families, including those who are bereaved:
- Acorns is currently supporting:
- Over 270 children and around 365 families at Acorns in Birmingham3
- Over 200 children and over 280 families at Acorns in the Black Country3
- Over 210 children and more than 270 families at Acorns for the Three Counties3
- An estimated 2,000 plus children in our catchment area meet our criteria (including those we are currently supporting)4
- Acorns current strategy aims to care for 50% more children and families in our hospices and their homes by the end of the decade
- On average, every week, one of the children Acorns cares for will die2
- 37% of the children and families at Acorns are from BAME (Black, Asian Minority Ethnic) backgrounds
- Around 3% of families Acorns supports have more than one child in the care of Acorns
- Approx 3% of the children Acorns cares for have cancer
Our facilities and services
Acorns is flexible to those who use the facilities and services and support is delivered in response to the individual needs of a child and their family. A package of care is tailored for each individual child which includes their medical, emotional, cultural, religious and spiritual needs. This package can be provided in the hospice, a family’s home or elsewhere in the community.
- Acorns has three children’s hospices:
- Acorns in Birmingham (located in Selly Oak) opened in 1988 (the third children’s hospice in the world at the time)
- Acorns in the Black Country (located in Walsall) opened in 1999
- Acorns for the Three Counties (located in Worcester) opened in 2005
- The hospices are purpose built bungalow style buildings with ten specially decorated bedrooms designed to cater for children and young people from birth to 18 years of age. They are designed to be a home-from-home environment to help children enjoy their stay and make the most of every day
- On site hospice facilities include hydrotherapy pools and spas, multisensory rooms, complementary therapies, play and activity areas with up-to-date IT equipment and landscaped gardens
- Special adolescent wings ensure privacy and a managed level of independence for older children.
- Separate on-site accommodation for families allows them to stay with their child if they wish.
- The hospices have ‘special bedrooms’ in a separate area within the building where children can stay after they have died until their funeral.
- On acceptance to Acorns every family will receive an assessment of their needs. This will be undertaken by a professional who has a health or social care background. They will work with the family to determine the services that will best meet their needs at the current time and agree a plan of care and support that may include: psychosocial support, advocacy, short breaks in the hospice or at home, sibling support and a range of support groups for all members of the family. End of life care and bereavement support will be available whenever is it needed and all families will have access to emergency support via the hospices 24 hours a day.
- Each hospice has a team comprising:
- Registered children’s nurses
- Health care assistants (HCAs)
- P. (managed by the Acorns medical director)
- Family team workers
- Volunteer coordinators
- Adolescent workers
- Transition workers
- Sibling workers
- Administrative, housekeeping and kitchen team
- Community fundraisers
- Trained volunteers
- Care is provided during a hospice stay (whether this is a planned short break, emergency or end of life care) including:
- Personal care
- Medical support
- Symptom management
- Pain control
- Physiotherapy including hydrotherapy
- Complementary therapies
- Play and activities including creative sessions/workshops such as art and craft, music, drama, puppet shows and dance
- Access to IT equipment, toys, books, CDs and DVDs
- An outreach team of nurses and volunteers is also able to offer support to families within their home.
- Acorns’ Children, Young People and Sibling Service, provide a therapeutic based service to address the social and emotional wellbeing needs of young people from the age of 10 upwards and siblings. The service comprises a dedicated siblings team (currently supporting around 320 siblings) and a separate adolescent team, with support being provided for young people and siblings through focused groups, individual therapeutic based sessions and bespoke programmes, according to assessed need.
- The adolescent team work closely with Acorns’ Transition team, supporting young people aged 14 + to develop life skills through a programme of ‘Preparation for Adulthood’ workshops
- Transition team workers work directly with young people aged 14 onwards and their parents or carers; undertaking transitional plans and linking them into adult services in preparation for when they leave children’s services. Over 135 young people aged 14+ are currently being cared for by Acorns; over 65% of these are on a transitional pathway.
- Acorns runs a programme of specialist support groups for:
- Bereaved parents
- Parents & carers
- Asian mothers
- These bring together those in similar situations, reducing isolation and helping develop resilience, self-esteem and a sense of identity.
Governance, regulation and representation
- Acorns is an independent charity managed by an appointed chief executive and a senior management team who are accountable to a board of trustees.
- A number of formal groups including parents, carers and young people provide regular feedback and input into how services are delivered and can be improved to better meet needs. These include:
- Young Ambassadors
- Parent Carer Champions
- Siblings Council
- Care services are regulated and audited by the Care Quality Commission (CQC) http://www.cqc.org.uk
- Acorns is a member of the Fundraising Standards Board (FRSB) – the regulator for fundraising in the UK http://www.frsb.org.uk
- Acorns is a member of Together for Short Lives– The UK voice for children and young people who are not expected to reach adulthood and their families togetherforshortlives.co.uk
- Acorns is a member of Hospice UK (formerly known as Help the Hospices) – the national charity for hospice care hospiceuk.org
- It costs almost £10million a year to run our care services in the hospices and community, providing care for the child and support for families.
- It costs £850 to provide a nurse-led 24 hour palliative care short break in the hospice.
- Acorns relies heavily on the community to fund the majority of its activities.
- Through contracting with Clinical Commissioning Groups (CCGs) and other statutory bodies, Acorns aims to recover 30% of the cost of care.
- Out of every £1 we spend, 88 pence goes on charitable activities (i.e. care services). For every £1 we spend on non-charitable activities (i.e. fundraising) we raise £5.89 of income.
- Acorns has a retail chain of over 50 shops and a Distribution Centre based in Mucklow Hill, Halesowen. In the last financial year, the retail network generated £1.3m net profit for the charity.
- Acorns participates in two lotteries: TLC in Birmingham tlclottery.co.uk and the Hospices Lottery in Worcestershire.
- Acorns is part of Childlife, a fundraising partnership between four charities working with children, young people and their families throughout the UK childlife.org.uk
- Acorns employs around 400 staff in its three hospices, network of shops and head office3.
- Acorns has over 1,600 active volunteers3 who work in all areas of the organisation5
- Around 435 in the hospices (135+ in the Black Country, 150+ in the Three Counties, 150+ in Birmingham)
- Over 200 in fundraising and events
- Around 1,000 in our retail shops
Document last updated October 2016
1 Eligibility criteria (as outlined by Together for Short Lives)
- Category 1
Life-threatening conditions for which curative treatment may be feasible but can fail
Access to palliative care services may be necessary when treatment fails or during an acute crisis, irrespective of the duration of threat to life. On reaching long-term remission or following successful curative treatment there is no longer a need for palliative care services.
Examples: cancer, irreversible organ failures of heart, liver, kidney.
- Category 2
Conditions where premature death is inevitable. There may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities.
Examples: cystic fibrosis, Duchenne muscular dystrophy.
- Category 3
Progressive conditions without curative treatment options. Treatment is exclusively palliative and may commonly extend over many years.
Examples: batten disease, mucopolysaccharidoses.
- Category 4
Irreversible but non-progressive conditions causing severe disability, leading to susceptibility to health complications and likelihood of premature death.
Examples: severe cerebral palsy, multiple disabilities, such as following brain or spinal cord injury, complex health care needs, high risk of an unpredictable life-threatening event of episode.
2 From 1 Oct 2015 to 30 September 2016
3 As of 1 October 2016
4 Leeds University study with Martin House Children’s Hospice in Yorkshire and The Children’s Hospital, Cardiff, published in the Journal of Paediatrics Volume 129, Number 4, April 2012
5 Volunteers may cross over different areas of the organisation
Financial figures are based on 2015/16 accounts as reported in Impact Report – available online at www.acorns.org.uk/publications