This is Children’s Hospice Week (20-26 June) – the only week in the year dedicated to raising awareness and funds for children’s hospice and palliative care services across the UK, and the seriously ill children and young people they support.
99,000 children in the UK have a life limiting or life threatening condition. This Children’s Hospice Week we want to celebrate and raise awareness for the incredible work children’s hospices do for the children and families facing the unimaginable.
This year’s Children’s Hospice Week theme is #ForTheChildren, which highlights the core purpose of everything we do at Acorns as a children’s hospice.
Haniya was born just like any other baby girl, until mum Shabana noticed she wasn’t reaching certain milestones.
After struggling to lift or hold her head up, Haniya was referred to hospital. Whilst initial assessments suggested a muscle disorder, an MRI scan later revealed brain abnormalities as a result of a rare neurometabolic disorder. Known as Leigh Syndrome, the disorder affects the central nervous system.
The family found a lifeline in Acorns Children’s Hospice.
“I locked myself away at home with Haniya. But coming to Acorns pushed me to go out. We started with the Stay and Play groups and I’d put them in my diary as appointments to make myself go. Now it’s a second home to me.
“Acorns isn’t just there for me and Haniya. Acorns is there for all of us. I don’t know what I’d do without them, they’re there for me no matter what.”
Here at Acorns, we provide vital care for children like Haniya, with life limiting and life threatening conditions, and their families. But we can’t do this alone. Join us this Children’s Hospice Week and show us what you’re doing #ForTheChildren.
More and more families are in need of our children’s hospice care and we rely on the generosity and ongoing support of our local community to continue our lifeline services.
Our highly specialised nursing teams provide respite care and give mums and dads the chance to be parents, not carers. Our play therapists support siblings to connect and make memories that last a lifetime. Our specially trained Family Services team is there providing expert emotional and practical support for families, advocating on their behalf and giving advice. And if the time comes to say goodbye, we make sure a family has privacy and dignity so they can grieve together.
This Children’s Hospice week, will you make a donation to help support this vital service?