Trekking the Great Wall

 We want to say a huge ‘thank you’ to all of our amazing supporters who trekked along the Great Wall of China on the Acorns China Trek. They took on the challenge of a lifetime to raise vital funds to help us continue providing our specialist nursing care to children and families across our region. 

This incredible group of people raised over a jaw-dropping £155,000 – absolutely smashing their original target of £60,000. In fact, we had so many supporters sign up to the trek (double the number we expected!), that we increased the target to £105,700… and they exceeded that too! We are completely blown away by their dedication and generosity. 

Among the group were current and former Acorns staff, loyal supporters, and friends old and new. Before they set off, we caught up with a few of them to find out what inspired them to take on this unforgettable trek – and how they were feeling as the adventure approached! 

Louise was inspired by Acorns

Louise, who works at Acorns, is no stranger to the incredible impact our hospice care has on children and families. 

“I was inspired to take part in the charity walk because I see first-hand the amazing work Acorns Children’s Hospice does. Knowing I could help raise funds and awareness while pushing myself physically and mentally will make it feel even more meaningful.” 

Louise was loving the training – a great excuse to get outside and explore. 

“Dare I say I’ve got the bug and have fallen in love with hiking!” 

She was especially excited about that magical moment when they’d finally get to step onto the Great Wall:

Three women on the Acorns China Trek holding an Acorns Children's Hospice poster.

“It’s going to be such a surreal and proud moment. Knowing we’ll have trained, fundraised, and come together for something so meaningful – that’s what will make it unforgettable.” 

Of course, she knew it wouldn’t be without its challenges. 

“Being away from my son Harry, my husband, and our dog Chester will be tough. And let’s just say I’m not looking forward to the bugs and basic toilets!” 

People climbing up some steep steps on the Great Wall of China.

A cause close to Emma’s heart

Emma saw her 40th birthday as the perfect reason to do something extraordinary – and what could beat scaling one of the world’s greatest wonders for a cause close to her heart? 

“I wanted to do something amazing after turning 40, and what better way than trekking across the Great Wall all in aid of an incredible charity.” 

Training went well, even if the odd push from her trekking mates Lindsay, Sarah and Julie was sometimes needed. “They give me a boost when I need it!” 

Emma was most looking forward to soaking up the whole experience: 

“From getting to know our fellow trekkers to creating memories that will last forever.” 

Like many others, leaving her family behind was her biggest worry – but she carried their love and support with her every step of the way. 

Coventry Support Group 

We can’t forget the brilliant Coventry Support Group, who have been raising funds and awareness for Acorns for over 36 years. Founded by Martin Banbury, the group sets out each year to raise £50,000 – and to date, they’ve raised a phenomenal £1.5 million for Acorns. 

When the Great Wall Trek came up, Martin and his wife Felicity, who’ve previously taken on challenges in New Zealand and across Vietnam and Cambodia, rallied five other members to join them. 

Together, the group raised over £36,000, on top of setting individual training plans, hosting fundraising events, and even organising group training walks which, quite rightly, ended with a bite to eat and a drink. 

“We’re really looking forward to sharing this challenge with other like-minded people. There’ll be a huge sense of achievement once it’s done, knowing that we’ll have pushed ourselves and raised such a significant amount for Acorns.” 

Six people wearing Acorns tops, all with a pair of shoes hanging round their necks, and one is holding a donation bucket.

Acorns China Trek – an incredible achievement

To everyone who took on this once-in-a-lifetime journey trekking along the Great Wall of China, thank you. You’ve made such a difference to the lives of the children and families who rely on Acorns, and we couldn’t be prouder to have had you walking for us.

We were cheering you on every step of the way. We hope you enjoyed every moment, you all achieved something truly incredible.

If you’re interested in joining one of our future treks or events, check out our events calendar.

Join an event

Spring has seen an outpouring of community spirit across the Midlands, with local football clubs Walsall FC, Solihull Moors, and Aston Villa championing our work.

Through a series of matchday takeovers, these clubs didn’t just deliver thrilling football action; they provided a powerful platform for Acorns to connect with over 50,000 passionate fans. The result? A staggering £10,000 raised – a sum that will make a very real difference, enabling us to provide the care, love and comfort families facing the unimaginable desperately need.

The secret ingredient to these successful takeovers? Our amazing army of Public Collection volunteers who, armed with a smile and a bucket, make these days a resounding success. And it wasn’t all hard work – plenty of fun was had along the way!

Public Collection volunteer experience

We caught up with some of our newest Public Collection volunteer recruits to hear about their experiences, and Katy Chesters, the Assistant Headteacher at St Thomas More Catholic School in Willenhall, perfectly captured the spirit of the Walsall FC takeover day for her students: 

“This was our first opportunity volunteering for Acorns and what an experience it was!” Katy said. “Acorns has been selected as one the charities our Parish will support this year and when our Sixth Form spotted the chance to fundraise at a local Walsall FC game this seemed perfect. 

Alex the Acorns and an Acorns Public Collection volunteer at a football ground.
Two Acorns volunteers cheering on players during a football match.

“It was a fantastic day from start to finish.  We were cared for and looked after by all the team of staff from Acorns, the stewards at the game; and the fans from both sides were amazing in their support and contributions.

“In all we found this a most humbling experience, knowing that our efforts have made, in some way, the lives of families of those coping with illness in our local community more bearable. 

“Without doubt St Thomas More Catholic School will be signing up for further events and doing all we can to support this wonderful charity.” 

We’re so grateful to Katy’s team for giving up their time to help us to raise vital funds for our hospices.  

Get involved in volunteering

At Acorns, we’re always on the lookout for new, enthusiastic volunteers to join our fun and impactful collections and Community Giving Events. From the roar of sporting events to the friendly atmosphere of community fairs, and the everyday bustle of supermarkets and garden centres, there’s a whole host of opportunities to get involved with across the Midlands. 

No prior experience is necessary – just a smile! If you’d like to come join one of our fun events and help us change lives, please take a look at our upcoming opportunities. Your gift of time could be the next game-changer for Acorns! 

Register your interest

Young people visiting our Birmingham hospice were in pole position for an unforgettable F1 residential weekend, bringing the excitement of the Australian Grand Prix to life – and none of it would have been possible without the generosity of our amazing supporters.

The weekend, organised by our Young Persons Worker Debra Clarke, was packed with motorsport-themed fun. From a big-screen showing of the Melbourne race to whizzing around an electric race track and even a special visit from a blue Ferrari – it was a dream come true for our motorsport fans.

It wasn’t just about the excitement on the track – although that was a definite highlight! The weekend is a wonderful example of how our care goes beyond medical support. Our dedicated teams work so hard to ensure that the children and young people who use our services can enjoy joyful, meaningful moments – just like any other child. All the while still receiving the specialist medical care they need from our expert palliative nurses.

Safe and supportive spaces

One young person shared their thoughts on the hospice. They told us, “It really is fun everytime I go. I get to play outside, go swimming and do the car racing weekend.”

These special residential weekends do so much more than provide entertainment. They create safe, supportive spaces where our young people can grow in confidence, build friendships and develop social skills – and at the same time do something they love.

During the Grand Prix weekend, young people who joined us told us they felt safe, supported and included thanks to the kindness and dedication of our staff.

One said they were especially happy to come ‘because of seeing the Ferrari car’ – and who wouldn’t be?

A young boy sat in the drivers seat of a blue Ferrari.

Another told us they were proud to have won a medal and trophy, which left them feeling really happy by the end of the weekend.

The podiums made out of cardboard with black and white balloons across the wall behind.

Fun, friendship and feeling part of something

It’s moments like these – smiles, laughter, new friendships and personal achievements, while providing specialist medical care – that show the real impact of what your support makes possible.

These shared experiences help to develop emotional and mental wellbeing, giving our young people the chance to connect with others who share their passions. For some, it’s the start of building lifelong confidence.

One young person told us they had fun with their peers but hoped for more children their age next time – and we’re listening. Every event helps us to learn and improve, guided by what our young people want and need.

Upholding children’s rights

Activities like these don’t just bring joy. They also reflect our commitment to upholding the UN Convention on the Rights of the Child. We make sure every child has the right to express their thoughts and wishes, to take part in cultural and leisure activities, and to be included in a way that respects who they are.

From creating opportunities for children with disabilities to connect with their peers, to ensuring their voices are heard and their preferences shape the day. Our approach is always centred on what’s best for them.

A young boy and a nurse on the floor playing with a race car track and toy cars.

Thank you

To everyone who donates, fundraises, and supports our work, thank you. You are helping us deliver not just specialist nursing care, but unforgettable experiences filled with laughter, adventure and friendship. Together, we’re giving children and young people the chance to be themselves, explore their interests, and feel truly special.

Because of you, our children got to race ahead – and they’re still smiling.

Support Acorns

Amanda Quimby and her family first discovered Acorns Bubble Rush after spending precious time at the hospice with their son, Astro, for end-of-life care. Wanting to give back to the charity that meant so much to them, they saw Bubble Rush as the perfect way to fundraise while creating joyful memories together.

An annual tradition

Amanda says: “The event is so inclusive and accessible. Whether you want to run, walk, or wheel your way around, it is something the whole family can enjoy. It felt like the best way for us to celebrate Astro while supporting Acorns.”

Since signing up for their first event in 2023, Amanda’s family has made Bubble Rush an annual tradition – even getting the grandparents involved.

She added: “It’s such a fun day from start to finish. The atmosphere is amazing, with warm-up activities, stalls, and people sharing stories about what Acorns means to them. You really feel part of something special.”

For Amanda, it’s the little moments that make the event unforgettable.

A family enjoying the blue bubbles at Acorns Bubble Rush event.

Praise for the Acorns team

“We took before and after selfies, and seeing the transformation was hilarious! At one point, we got completely engulfed in foam and came out looking like giant marshmallows.

“It was lovely seeing people wearing personalised t-shirts to honour their loved ones. We wore little badges of Astro, and it was so special to see him also covered in bubbles – joining in on the fun.”

Amanda and her family are full of praise for the Acorns team, from the enthusiastic volunteers cheering everyone on to the little touches that make the day even more enjoyable.

She added: “Our daughter loved high fiving the foam fingers along the route. The team really goes above and beyond to make sure everyone has a fantastic time.”

Taking part in Bubble Rush is more than just a day out – it’s a way for Amanda’s family to celebrate Astro while giving back to Acorns. 

“The hospice gave us a home-like environment to spend our last days with Astro, something we never had in hospital. Their support was invaluable, and they continue to help us through bereavement support and sibling groups for our daughter.” 

And her top tip for future Bubble Rush goers? 

“Goggles or glasses are a must for children so they can dive into the bubbles.” 

Join the fantastic bubble-filled day!

Come along to the return of our most foam-tastic event in 2025 and take on the bubbles, all while supporting Acorns. Early Bird is now on so get your tickets for the whole family before prices go up. Hurry as they won’t last long!

Sign up today

“It’s a place where you feel like you’re on top of the world. To watch the sun rise from the top of the mountain was simply beautiful. You feel so amazing and free, among the clouds, and you wouldn’t want to be anywhere else.”

Phil and Helen Evans still remember watching the golden morning sun rise after joining our spectacular Acorns Sunrise Trek – and walking through the night up the highest peak in South Wales

They did it to raise money in memory of their beautiful son Ben, who died aged just 11 and he was in their thoughts and hearts every step of the way.

A beautiful way to remember

“Ben was an amazing boy, and was a joy to be around,” mum Helen said. “He was a wonderful character, and always made his feelings well known. He loved TV and CBeebies, and he loved being with friends. 

“Ben was very much with us by our side as we climbed and to watch the sun rise was the most beautiful way to remember him.” 

Phil and Helen climbed Pen Y Fan with our adventurous team of Acorns supporters, taking in a breath-taking sunrise and spectacular views of the Brecon Beacons National Park.  

They also spoke about Ben’s devastating diagnosis and the lifeline support and specialist medical care they received from us during Ben’s final days.

A man, woman and son all smiling together.

“Acorns supported us in so many ways.”

A man and a woman smiling at the top of a mountain with a sunrise behind them.

“Ben had a number of health issues, he was profoundly deaf and he was born with a rare genetic disorder called Mitochondrial Disease,” Helen said. “It can affect people in different ways, but for Ben it affected his hearing, feeding, muscle tone and kidneys, which required dialysis during his final year.

“When Ben was 10-years-old we were given devastating news. He was diagnosed with cardiomyopathy, a condition affecting the heart, and we were told there were no further treatment options and we were referred for palliative care at Acorns.”

Helen added: “It was a slow decline, and the dialysis was taking its toll. Ben was very, very poorly but we were able to liaise with the specialist nurses about the care Ben needed, and they helped us to develop the advanced care plan, so that we were as prepared as we could be for what lay ahead. Acorns supported us in so many ways.”

The family had regular contact with one of our Family Support Workers, and Ben received specialist medical care and help with tube feeding, along with holistic therapies including massage, play and music. Helen and Phil were also able to access group support, along with alternative treatments.

It was in September 2016 when Ben passed away at home.

A man and a woman looking out at a sunrise wearing t-shirts with a photo of their sun on the back.

Praise for the Acorns team

Helen said: “Acorns guided and supported us to take care of things that had to be done and we were in a protected bubble at the most painful time imaginable.

“We were able to stay at the hospice with Ben after he died. Everyone at Acorns was so supportive, and being with Ben allowed us the time to say goodbye. We are so thankful for that and for all the help Acorns gave us.”

We’re so grateful the couple have since raised an amazing £30,000 for us from a host of fundraising activities.

Acorns Sunrise Trek

Helen said: “When I saw the trek advertised, it spoke to me straight away. It felt like it would be an unforgettable experience and to do it with Ben firmly in our hearts would be something really beautiful and special.  

“While I did find the final stretch of the walk quite challenging, Phil and the trek leader were very encouraging – and I thought about Ben and what he went through. We made it to the summit with just minutes to spare and the sunrise was amazing.” 

Ultimately, Helen and Phil said the trek gave them purpose and something amazing to do to remember Ben – and to support Acorns to say ‘thank you’. 

Helen said: “We wanted to say thank you for all the wonderful support we were given by Acorns through such a horrendous time. We wanted to give back, so that others who are going through a similar situation get the medical care and all the support they need.”

A group of people climbing Pen y Fan.

After reaching the peak, a fellow bereaved parent gave them a stone she had painted with Ben’s name on it.

“We were really touched. We always painted stones, and it was really beautiful. We were able to place the stone at the summit in his memory as the sun rose.

“It was something so special and totally unforgettable.”

In the heart of Birmingham’s Jewellery Quarter lies a workshop where family values and craftsmanship intertwine. It’s here that Deakin and Francis, England’s oldest family-run jeweller, has been creating fine jewellery for over two centuries.

For Managing Director Henry Deakin, the work is deeply personal, and that sense of meaning is at the heart of a unique gift to Acorns – a bespoke signet ring experience offered as an auction prize for the upcoming Acorns ‘This Town’ Gala Dinner.

A gold signet ring.

Crafting memories that last forever

The idea for the signet ring experience grew from an emotional moment that had an enduring impact on Henry.

“A gentleman came to us knowing he didn’t have long to live, after being diagnosed with terminal cancer. He wanted to create something special for his daughters – a pair of signet rings so they always had something with them to remember him by,” he says.

“We were so touched by their story that we wanted to create a truly bespoke experience for them. We arranged a time where they could come along to the factory together, stamp the rings themselves, and create lasting memories – not just by receiving the rings, but by being part of the journey.

“It was an emotional day for everyone involved. When they received the rings, they were in floods of tears, telling us we couldn’t imagine how much it meant to them.”

Moments like this define what Deakin and Francis strive to deliver. “We don’t just make jewellery,” Henry explains. “We create pieces that carry memories, symbols of love and connection that last a lifetime – and beyond.”

So much of what Deakin and Francis do resonates with the memory-making that Acorns nurses strive to deliver for every family they support. Whether it’s crafting special hand casts, thumbprint pendants, or handprint family trees, Acorns nurses go above and beyond to ensure families have meaningful keepsakes to cherish at every stage of their journey – tangible reminders of precious moments spent together.

A man who is wearing glasses and smiling at the camera with his arms crossed.

A personal connection to Acorns

For Henry, and wife Jo, supporting Acorns feels close to home. “I’ve experienced the fear of having a seriously ill child – my son was in neonatal intensive care when he was born. It was a terrifying time,” he shares. “Sick children… it’s about the hardest thing anyone can face.”

This connection inspired Deakin and Francis to offer something truly meaningful for the Acorns ‘This Town’ Gala. “We’re delighted to support Acorns, not just because of the incredible work they do, but because it feels personal. It’s a chance to give back in a way that reflects what we stand for: care, connection, and community.”

The experience of a lifetime

The winning bidder of this extraordinary prize won’t just walk away with a piece of jewellery – they’ll create an unforgettable memory. From the first sketch to the final polish, they’ll be part of the journey.

It begins with a visit to Deakin and Francis’ historic workshops, where tools and techniques passed down for over 230 years are still in use. “If you don’t have a crest or design in mind, we’ll help you create one,” Henry says. “It’s a collaborative process. We’ll sit down, share ideas, and come up with something truly personal.”

Once the design is finalised, the crafting begins. The metal is stamped, shaped, and engraved with care and precision. It’s then hallmarked – a centuries-old tradition ensuring quality – and polished to perfection.

A man's hand holding a ring.

“It’s not just about making a ring. It’s about giving someone an experience they’ll never forget, and a piece of jewellery that becomes part of their family story.”

Championing local

For Deakin and Francis, supporting a local charity like Acorns makes perfect sense. “We’re a 7th-generation family business rooted in Birmingham, with generations of employees, some of whom have had direct personal experiences with Acorns,” says Henry. “We believe in looking after those around us. With larger charities, it can sometimes feel like your donation gets lost, but Acorns is different. You know the support is going directly to the families who need it most.”

The Deakins are equally passionate about championing Birmingham itself. “The city has so much to offer, but it’s often overlooked. We want to show people the talent and heart that exists here.” The company is so passionate about Birmingham that they’ve evolved their branding from ‘Made in England’ to ‘Made in Birmingham’.

“We’re fortunate that, as a British-based manufacturer, we can offer these in-person experiences,” Henry adds.

More than jewellery

As Henry reflects on the gift, it’s clear this is about much more than crafting a signet ring. “When we create something for someone, it’s almost always emotionally charged. People come to us during big moments in their lives – births, marriages, losses. It’s a privilege to be part of those stories.”

And their partnership with Acorns brings this sentiment full circle. By offering this experience, Deakin and Francis isn’t just offering a prize – they’re offering the chance to create a memory, honour a legacy, and make a difference.

Like the ring itself, its impact will last a lifetime – both for the winning bidder and in the vital care it will give to seriously ill children and their families when they need it most.

Time with my son Yusuf

“Yusuf is a little cutie pie,” says mum Iram. She’s right. His big beaming smile greats everyone who meets him.

Yusuf is one of 6,000 children born in the UK every year with a syndrome without a name – a condition so rare it remains undiagnosed. But it means his life is limited.

Yusuf’s complex care needs were discovered during the first week of his life. Iram had taken her newborn son home and knew something wasn’t right. Her middle child Musah had passed away from an undiagnosed condition two years earlier. Yusuf’s dramatic weight loss was alarmingly similar.

Iram said: “You couldn’t tell when he was born. He was absolutely fine, a healthy baby. But when we brought him home, he’d lost 10% of his weight and I just knew something was wrong, I could feel it. 

A mother holding a young boy who has a tube into his nose.
Yusuf and his mum enjoying a multi-sensory therapy session at Acorns.
A mother pushing a young boy in a pushchair outside.

Yusuf’s diagnosis

“We took him to hospital and the same consultant who looked after my other son was there and I’ll never forget the look on her face. They’d tested Yusuf’s blood. I looked at her and she nodded her head, she didn’t have to say anything. I knew Yusuf had the same condition as Musah. 

“My whole world stopped. My other children had been born healthy and fine and I just didn’t think it would happen to me again. But Yusuf has amazed me. His condition is life limiting and will eventually lead to kidney failure but he’s active, he does well with his feeds, he sleeps through the night – he’s doing really well. I’m proud of him.” 

The family’s journey with Acorns began in early 2020, as the coronavirus crisis swept the globe. Over the past 18 months they have visited their local hospice, Acorns in Birmingham, to enjoy time together, making precious memories and having fun in a safe and secure place. 

They come to the hospice for important hydrotherapy, family splashes and music therapy and especially enjoy our Stay and Play sessions. 

“Acorns gives us experiences and time together. Time to just be with each other where I don’t have to worry about his condition and he’s just my son for the day.” 

A young boy with a tube going into his nose lying down. A nurse is looking at him next to him.

Acorns provides vital support

“There is no other place like Acorns for children like Yusuf. We go swimming together in the pool. We have messy play sessions with other children. And I have a whole fridge covered in artwork we have created together. I like to show it off to my family and friends.  

“Yusuf loves it at Acorns and seeing him smile and do things he couldn’t at home just makes me so happy. It may sound small but doing things together and filling his day with fun means the world to me.  

“Acorns gives us experiences and time together. Time to just be with each other where I don’t have to worry about his condition and he’s just my son for the day.” 

Meet Julie Rose: The Heart of Acorns Walsall Shop

Julie Rose describes Acorns as one of her favourite places she’s worked, and it’s clear when you speak to her that she feels very at home here. Her warmth, kindness, and willingness to help shine through in everything she does, making her an invaluable part of the team. “I treat people how I want to be treated,” she says, welcoming every customer that walks through the door with a smile.

These qualities are just few of the reasons she’s been recognised as one of our Volunteers of the Month.

Julie’s hard work

Julie is one of the wonderful shop volunteers at Acorns Walsall and, after receiving a glowing nomination from shop manager Tom Owen, it’s no surprise that all her hard work has been recognised with this award. We went along to the shop hear more about Julie and the amazing work she’s been doing.

Over the past two years, Julie has gone above and beyond for Acorns, even going as far as completing her training to become one of our Key Volunteers. She now takes on greater responsibilities, ensuring the shop runs smoothly in Tom’s absence:

“Whenever Tom has a meeting, he trusts me to manage the shop floor – overseeing the tills, assisting customers, supporting other volunteers and, handling any IT mishaps, which always seem to occur the minute he walks out the door!” she said.

An Acorns shop volunteer looking at the shelves in an Acorns charity shop.

“Tom’s teaching me everything he can to build my skills. We have a great working relationship, bouncing ideas off each other to make the shop as successful as possible. I’ve learned so much thanks to his guidance.”

But for Julie, volunteering is about more than just managing a shop – it’s about making an impact.

“I truly felt like I had made a meaningful difference”.

Three woman behind a till at an Acorns charity shop.

Making a difference

With over a decade of care experience, she brings unique skills to her role, often stepping in to support members of the local community when they most need it.

She recalls comforting a distressed child with autism, who had come along to the shop with his mother for some shopping:

“He was visibly upset, but with my extensive experience in care, I knew I could step in to help him and his mother. By the time they left, their spirits were much noticeably brighter, and I truly felt like I had made a meaningful difference,” she shared.

On other occasions, she is a friendly face for an elderly gentleman who regularly stops by just to chat.

A passion for Acorns

She shared: “I think he finds comfort in knowing someone is always here, and we are more than happy to be that friendly presence for him.

“Sometimes, it’s more than just the selling – it’s about helping the local community with whatever they may need at that time.”

Julie’s passion for Acorns is clear. “I feel more valued here than anywhere else I’ve worked,” she said. “Even small gestures, like saying ‘You did well today,’ make a big difference. I know I’m making an impact every time I step into the shop.”

A woman wearing an Acorns volunteer lanyard smiling.

And her advice for anyone considering volunteering at Acorns?

Julie added: “Just do it. It’s a brilliant opportunity to meet new people and develop your skills, all whilst helping to deliver vital care to local children and their families.

“Volunteering for Acorns has boosted my personal confidence greatly. It has made me to feel capable of achieving so much more.”

Why not get involved yourself?

It’s thanks to volunteers like Julie that our network of nearly 50 shops is so successful, bringing in over £2 million a year. Our retail team simply couldn’t operate our shops without their help.

Make a difference in your local community and view the current volunteering opportunities at Acorns: www.volunteers.acornscareers.org.uk

Acorns Nurse Katie was among the team of ‘superheroes’ Karen and Jonathan say gave them ‘everything we needed without knowing we needed it’.

Katie shares her memories of meeting Thea and her family for the first time and how the hospice team at Acorns in the Black Country gave them the gifts of vital care, support and lifetime of memories.

I remember walking in and seeing this tiny beautiful little baby; her little features were absolutely perfect. Her family were soaking up every minute they could with her.

The gift of time

Thea’s family needed the precious gift of time. They needed time as a family of four, time to cuddle Thea, time to cry and time to laugh. Most importantly to be able to do all these things knowing they were being well cared for.

They didn’t need to fear what they may need to do or not do when by themselves at 3am. They didn’t need to think of the day-to-day mundane jobs of figuring out what to eat or when to wash clothes, because it was done for them. They knew Rupert was happy and could be watched if they needed some time alone with Thea. They just got to be parents.

The family wanted to spend time to create memories with Thea in a calm and caring place, and that’s what they got. We embraced them into the Acorns family and gave them the support they needed. They knew we were keeping a close eye on Thea and were ready to intervene to keep her as comfortable as possible.

Two women sit next to a lying baby. One woman holds a Christmas bauble with a printed baby handprint on it
Two white baubles hanging on a Christmas tree. One says Thea Evelyn and the other has a small hand print with eyes and a nose to make it look like a reindeer.

Creating memories

The most important thing we did was accept where they are at. We try our hardest to see a family’s needs and meet them there. Some families want to know we are there but need space, others want us to be involved as much as possible. Thea’s family fully embraced all we offered and from that, experienced lots of beautiful memories.

Johnny and Karen wanted as many memory making activities as we could offer. We had such a lovely time thinking of different crafts we could do. Hand and foot casts were one of the first we did. Thea had the tiniest little toes. I think I held my breath when I peeled away the casting!

We involved Rupert in some canvas painting so that he will also have something to look back on and know he was a part of.

When a family is going through end-of-life care with their child, so many moments can become a blur. There is so much to take in and try to understand, so many different emotions. But in these moments, these keepsakes, time has stood still. That handprint, footprint, photo, will always remain and bring back a memory. Keepsakes and memories like these are irreplaceable.

Christmas appeal

This Christmas we have launched an appeal to raise vital funds for children and families like Thea’s.

Acorns gives families like Thea’s some space and calm for those final days. We provide treasured memories that will last a lifetime.
But we can’t do that without you. Your gift today will help us provide vital care at our hospices in Birmingham, Walsall, and Worcester this Christmas and throughout the year ahead.

Donate to our Christmas appeal today
A woman, man and young boy looking over a moses basket at a small baby.

When Karen and Johnathan found out they were expecting their second child, they dreamed of all the adventures they’d have and the precious memories they’d make together.

A keen planner, Karen had mapped out their lives, imagining their children as best friends, playing out in the garden, building snowmen in winter and opening presents together on Christmas Day.

She and husband Johnathan were so excited to start enjoying life as the ‘awesome foursome’ that when baby Thea was born on 24th August 2023, one of the first things Karen did was order her personalised Christmas stocking and plate for Santa.

“It was just pure excitement,” Karen said. “We kept saying we were the awesome foursome. Our family felt complete. We’d mapped out our whole life together.”

A woman, man and young boy looking over a moses basket at a small baby.

“I live and breathe Christmas and because we didn’t know if Thea was a boy or girl during the pregnancy, I’d saved all these little things I wanted to get that I couldn’t until she was born. So once Thea arrived, I ordered them all – her personalised stocking, a plate to put out for Santa and the book she’d read on Christmas Eve.”

But after just four days at home, the family’s world came crashing down.

A dad holding a small baby with a feeding tube.

Karen says she’d had a ‘nagging feeling’ something wasn’t right. Thea was lethargic, sleepy and wasn’t waking for feeds. She and Johnathan had reached out to their midwife team and were reassured on daily visits.

“The pregnancy had been great. We loved being parents and couldn’t wait for our son Rupert to become a big brother,” Karen said.

Thea’s birth was quick; she arrived nine days early but was ‘perfect’.

Her sleepiness and struggles to feed were thought to be the result of her fast delivery. But on day four, Karen and Johnathan were alarmed at how floppy Thea had suddenly become and their midwife agreed.

“We went to our local hospital straight away,” Johnathan explained, “thinking we’d be there for a couple of hours and just needed to get some nutrition into her to build up her strength and energy. But as more and more doctors, nurses and consultants became involved and no improvements were being made, that was the point we thought, ‘something really isn’t right’.”

“We were blue-lighted to the Children’s Hospital the next day and she was hooked up to every machine going. I knew it was something significant,” Karen added.

Thea’s diagnosis

Thea was put on a ventilator while test after test was carried out over four long days. Nothing could have prepared Karen and Johnathan for the devastating diagnosis

“It was the worst news we could ever receive in our lives. We’d never heard of Nonketotic Hyperglycinemia (NKH). It’s a rare metabolic disorder that meant Thea couldn’t break down glycine which was causing her to have catastrophic seizures. Unbeknownst to us we were both carriers of this genetic misprint and had found each other.

“It was the hardest decision to take her off the ventilator, but we had to do what was right for Thea. She was just one week old. We sat with her in our arms, just looking at her. She was beautiful. It was the first time we’d seen her without the tubes since we’d arrived at the Children’s Hospital.”

A man and woman hold a tiny baby, looking down at her

“She was a little miracle. Her fighting spirit came through because she wasn’t ready to leave. When we took her off the ventilator, we were expecting no more than a couple of hours with her, but Thea was still with us the next morning.”

It was at this point, Karen and Johnathan were given the options to spend whatever time they had left together at home, in hospital or at Acorns Children’s Hospice.

It was then the couple made a new plan – to bring their family back together at Acorns and fill tiny Thea’s life with all the love and memories they could. This additional time and precious moments are something they will ‘treasure forever’.

“The moment we came to Acorns, a blanket was wrapped around us; first as a family of three, and then when Rupert joined us that blanket just got bigger and stronger.”

Acorns supported the whole family

“Everybody was looking after us, they couldn’t do enough. Putting us at ease and making sure Thea was cared for. They fed us and did our washing – doing those normal chores meant we were able to spend every minute, every second with Thea and that’s what we wanted.”

Thea found the strength to stay with Karen, Johnathan and big brother Rupert for 15 more days at Acorns, where they were given the gift of time together as a ‘normal family’, making memories and keepsakes, enjoying visits from family and spending sunny evenings out in the hospice garden.

When it was time to say goodbye on 15th September, Karen and Johnathan chose one of their favourite spaces. Thea was just 23 days old.

A woman holding a tiny baby sits in an Acorns sensory room, surrounded by multicoloured lights
A woman holds a tiny baby close to her and nuzzles the top of her head as they sit outside in an Acorns hospice garden

“We knew it was close. We said we wanted to be outside, because the garden meant so much to us. So, we sat in the sunshine and just held her in our arms, which was really peaceful, and Thea passed.

“We held her as long as we wanted to, just cherishing her and her beauty. We could hear Rupert’s laughter; he was happy in another part of the garden being looked after by staff and family. We had taken ourselves away to the memorial garden where we’d sit with Thea every evening when Rupert was sleeping. It just felt right.

“It was really horrific, but we were also so prepared and relaxed, because we were at Acorns and had been so well supported through Thea’s journey. What we achieved in those 15 days at Acorns was something special. Thea just wasn’t ready to go when in hospital, instead she’d decided ‘I’m going to give you so much more’.

“Acorns was everything we needed without knowing we needed it.”

Creating memories

“The first time we made that turn into Acorns our hearts were completely broken knowing we were there on an end of life pathway. But now when we return to visit it’s like we’re seeing family.

“It’s actually a positive thing for us; in that the majority of Thea’s life was here. Yes, there are sad memories but all our happy memories of Thea are here. Ultimately, Acorns puts a big blanket around you and makes you feel at home.

“They spent the time with us creating memories, things we wouldn’t have thought of doing – handprints, footprints, fingerprints. Things we will treasure forever.”

It’s these memories, keepsakes and many other priceless mementoes, Karen says, she and Johnathan hold on to.

Two white baubles hanging on a Christmas tree. One says Thea Evelyn and the other has a small hand print with eyes and a nose to make it look like a reindeer.

“I’ve got Thea’s thumbprint on a keyring that I rub and feel all the time,” Karen smiles. “That’s something I really, really cherish.

“Acorns knew all the things that we were sad about. We were trying to live every moment with Thea but also processing that this ‘plan’ we had for a future with her wasn’t going to be.

“I remember saying, ‘She’s not going have her first Christmas’, and the nurses offered to do Christmas day for us the next day – and they would have done it. They would have done anything to make sure we were living every moment to its fullest.”

A man and woman standing around a Christmas tree. The woman is holding a little boy. The man and little boy are putting a gold star on the top of the tree.

Thea has become an important part of her family’s Christmas celebrations, with Karen, Johnathan and Rupert creating their own special traditions with Thea at their heart.

“All those personalised things I’d bought for Thea for Christmas – at first it was so hard when they came through the post and we opened them up after she had passed,” Karen shared.

“But last year, our first Christmas without Thea, we still put out her plate for Santa, we released a balloon in the garden with written messages of love, and on Christmas morning, we each had a sentimental gift from Thea in her stocking. Rupert gave them out to each of our close family members. It was really nice and it’ll become an essential part of our Christmas for years to come.

“Thea touched so many people’s lives in her short life, it would be wrong for us not to continue celebrating her for special occasions. She will always be with us.”

Support families like Thea’s

Hundreds of local babies, children and young people rely on Acorns Children’s Hospice for specialist 24-hour care and support. In turn, Acorns relies on people like you to fund the majority of our services. Your support with any donation you can make is vital in helping us to continue the work that we do.

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