Liz’s daughter Lily-Mai was supported by Acorns for the Three Counties, the charity’s hospice in Worcester as she bravely battled a brain tumour for many years. She died at the hospice on 25th June 2018, aged just seven.
Liz said: “Acorns is such an amazing place. They were there for us and Lily-Mai, catering to our every need. They are still helping us now and will do into the future too. We’ll forever feel like part of the Acorns family.
“This campaign is so close to my heart. More and more families need Acorns for love and care at the most difficult times. To think there could be families like ours in the future who’ll miss out on these vital services is just unimaginable.
“I hope the Government listens to our campaign and does something urgently to make sure Acorns, and every children’s hospice is protected, this year and long into the future.”
The campaign Children’s Care Matters was launched by Acorns in July in response to the uncertain future of the Children’s Hospice Grant.
Uncertainty around future funding comes as demand for end-of-life care provided to families like Liz’s at Acorns has grown by 47% in the past year.
Trevor Johnson, Acorns Chief Executive, urged people to keep supporting the campaign. He said: “Today is an important day, because we deliver a powerful message to the Government. In just a few short weeks, thousands of people have shown they recognise the importance of the vital care Acorns provides.
“We are so grateful that Liz could join us today. Her story is just one example out of hundreds of families every year who use our services. Every family we care for has a similar story to tell, and every one of them faces an uncertain future if this Grant is taken away.
“We may have delivered these signatures, but the petition will remain open, so please keep on signing, sharing, and writing to your local MP. Together we can make a difference for the countless families who rely on children’s palliative care.”
The future of the £25 million NHS Children’s Hospice Grant which is distributed annually to children’s hospices across England is uncertain. It makes up around 13% of Acorns income, a total of £2 million.
Without the grant Acorns, and many children’s hospices nationally, may be forced to cut vital services for life limited children and their families.
To find out how you can support the campaign, visit www.acorns.org.uk/campaign