Kavarli’s story

Kavarli is a social butterfly. He loves to be around people, spreading smiles and stealing hearts wherever he goes.

Kavarli has a chromosome condition, which severely impacts his neurological development. This means he is unable to walk, talk and feed orally. He also has chronic lung disease and spends a lot of time in and out of hospital. His care needs are constant and he needs round the clock support.

At Acorns, we are here to help Kavarli and his family live life to the full. We’re by his family’s side when his health declines and times are tough. We’re also there to give mum Samantha a break when she needs it. Samantha explains:

“Caring for Kavarli is non-stop. It’s sorting out his tracheostomy throughout the day, having to check his gastrostomy is ok because if it’s not I can’t feed him. He’s also got an ileostomy that has to be checked often and changed.

“We were introduced to Acorns through the community nurse as somewhere Kavarli could go if I need a break. I love Acorns, I love the people there. It’s like another mini family and I know that when Kavarli is there I don’t have to worry about leaving him.

“He loves his time at Acorns. He likes the sensory room a lot and enjoys going into the spa. And he loves people, so he loves the attention.

“For me Acorns is really supportive. Especially during those times in hospital when we thought we might lose him. You don’t want to cry because you start to think people are going to get sick of you crying, but never at Acorns. They’re brilliant. If there’s anything I need, or any questions I need answering, there’s always somebody there to help.”

“It’s so comforting to know Acorns is there for me and my family. I don’t know what life would look like without them. If I’m being honest, it’s a struggle at lot of time. If I didn’t have Acorns, I’d struggle to cope.”