Being a first-time mum can be daunting for any parent, but when Sarah’s son Ethan suffered a catastrophic stroke during delivery her world changed forever.
It took another three months for doctors to discover its true impact, when a scan revealed half of Ethan’s brain had been affected. He has since been diagnosed with Lennox Gastaut Syndrome, a severe form of epilepsy which means he requires 24-hour care.
Sarah said, “They were quite amazed Ethan had survived. Nobody could tell us what would happen with him because in theory he shouldn’t have been with us.”
Sarah and her husband Kerry knew their lives would never be the same and with both having very small families, additional support would be vital. The couple found a lifeline in Acorns Children’s Hospice.
Despite their initial fears that a hospice would be ‘an unhappy place and a sad place’, it proved anything but and the family began their journey with Acorns after Ethan turned four.